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Thank you for joining us as we wait on the LORD. We will post new information here as we have it to help us keep all of you who have asked informed of the latest news.

Sunday, August 28, 2011

Happy, Happy Birthday, Baby!

I cannot let the day go by without talking about my bride. Today she begins her four months as two years my junior. In January, I'll resume my place as three years her senior. The eyes and smile that long ahead gave overwhelming joy to a couple in Charleston, SC now shine for me. God richly blessed me, though I couldn't know it fully at the time. Isn't it odd, how we try so hard to find the "perfect one" based on many factors dear to us, yet we pith to be looking for God's special one. What does that person look like?

First, he or she is one of God's choosing. Just as no "help" could be found for Adam in Eden, God knew exactly what his creation and creature needed. God is certainly capable of meeting the needs Adam would have. God, though, used this opportunity to introduce a relationship for equals; one that would benefit from the strengths of each for the good of the whole. Made for relationship, she was to be a companion to Adam, a helper - to complement Adam in his life and work. In this relationship, one would help the other for their good, to chasten lovingly, and to be a conduit of godliness when needed.

More evidence of the kind of relationship God intends between husband and wife is found in Ephesians 5:22-33. I won't go into the details, but if I could examine this passage a bit, I would say the weightiest burden here is for the husband to love his wife as Christ loved the church and gave himself up for it. This is a sacrificial love, giving all of himself lavishly, even to emptying himself to provide for and protect her. Paul does lead this section off with the statement that wives are to submit to their husbands, but there is a unity in this statement that, when taken with the later command to the husband's degree of love shows the mutual submissiveness of self that each is intended to give the other.

In the years I've been so blessed, I have never doubted Cynth's love for me, nor her commitment to me or our family that God be honored in our midst. God began a work in her somewhere along the way that continues even now, growing her through every trial and blessing to be that fit vessel he is using for his glory, just as I am blessed by God through her faithful obedience to his call. From Proverbs 31:10 comes this description:
An excellent wife who can find? She is far more precious than jewels.
The heart of her husband trusts in her, and he will have no lack of gain.
She does him good, and not harm, all the days of her life.
She seeks wool and flax, and works with willing hands.
She is like the ships of the merchant; she brings her food from afar.
She rises while it is yet night and provides food for her household and portions for her maidens.
She considers a field and buys it; with the fruit of her hands she plants a vineyard.
She dresses herself with strength and makes her arms strong.
She perceives that her merchandise is profitable. Her lamp does not go out at night.
She puts her hands to the distaff, and her hands hold the spindle.
She opens her hand to the poor and reaches out her hands to the needy.
She is not afraid of snow for her household, for all her household are clothed in scarlet.
She makes bed coverings for herself; her clothing is fine linen and purple.
Her husband is known in the gates when he sits among the elders of the land.
She makes linen garments and sells them; she delivers sashes to the merchant.
Strength and dignity are her clothing, and she laughs at the time to come.
She opens her mouth with wisdom, and the teaching of kindness is on her tongue.
She looks well to the ways of her household and does not eat the bread of idleness.
Her children rise up and call her blessed; her husband also, and he praises her:
"Many women have done excellently, but you surpass them all."
Charm is deceitful, and beauty is vain, but a woman who fears the LORD is to be praised.
Give her of the fruit of her hands, and let her works praise her in the gates.

It is with much gratitued in my heart that I praise God for my bride and wish her, once more, a very happy birthday.

Happy birthday, my love!

Friday, August 26, 2011

Sanctified? Not Yet!

A much better day or two, with the "tweaked" pain therapy seeming to be right on target. There is so much in my arsenal now, I can't imagine that it would not have some significant impact on the pain. I will add that my appetite, while not terribly off of late, has improved since beginning some of these meds (right, Cynth?) and I have been eating pretty well. As far as the fatigue, I've been getting by with less naptime the last couple of days. If I am good, I expect to be able to work tomorrow, until I possibly get to a breaking point with pain, fatigue, or any other effect.

I have been blessed so by God since my ordeal this week began Monday. Although I knew my bride was right about whether I should go to work the rest of this week, all I could hear was the loss to me that this represented. A loss of control certainly, a bit of a loss of worth, but also a denial of something I love. Not that work is more important than Cynth and the children, and I know full well my measure of worth is not determined by the constructs of man, but by God alone, in that he sought me when I was dead in sin and gave me salvation through the death of his son, and a life in eternity with him awaits. But work at a job that brings satisfaction amongst co-workers who love what they do and seem to genuinely care for one another has brought great rewards.

Meanwhile, God has been working in my heart about this work thing. I still miss it to be away even a few days. But I know beyond all doubt that he is using Cynth to help me hear him: "Slow down. Take the time, whatever that time may be, to recharge and get re-oriented to my view of work." It is not meant to be my crutch, anymore than my faith in him could be. Work is not to be the source of my happiness. God is. My work is another sphere of influence he has given me to show him to a world that doesn't know him. Through my work he uses me to bless others, if I am obedient to his call of me each day. Through my work, he provides for me and my family.

So, what began as a horrendous week in which I became increasingly doubtful and fearful, God once again was faithful to walk with me through the lowest of valleys, so far, all the while working on my heart. See, salvation begins with God working on you heart. Then all the rest of life is filled with him continuing to work on your heart to mold it, shape it, into the more Christ-like image he wants us to present on that day. Thankfully, God is the same - yesterday, today and tomorrow. This way we know he is faithful. He doesn't change. But we can, by his loving, merciful grace. Our life of change, into the image of him who died for me to set me free. Where does he want to work today?

Wednesday, August 24, 2011

Lord, I Need Thee

After a week confident that I knew the next phase, the plan for treatment, it all changed in the blink of an eye. Well, not exactly a blink. On Monday, I called to Georgetown to tell them that I was in pretty significant pain and was having trouble controlling it. Nurse Rose told me not to worry, that they would try to respond with another pain med modification.

Everyone, me most of all, were banking on my ability to get the pain under control so the chemo in the trial could go on. If the pain could not be controlled, I could lose this slot in this trial. No one wanted that. But I could not complete Monday's work, leaving at about 10:44. The remainder of the day was spent trying to find a comfortable position. I even called Georgetown to tell them of my inability to control the pain thinking that would prompt a move toward radiation and declining the trial for now. Monday went by with no appreciable change in the pain. I slept reasonably good, so Tuesday dawned and our plan was to continue as we had planned before - beginning the trial.

No sooner had I sat in the chair with Emerson, the oncology nurse practioner for Dr Pishvaian, and I could not get comfortable. I am answering his questions regarding the events of the past seven days, but under increasing discomfort. Finally, I asked if I could lay on the examination table. When he had to ask me why, I initially said I was tired, but later corrected the cause as discomfort. But the discussion from there centered on appetite, fatigue, and the pain. I mentioned my call of the day before, and he gave his recommendation to keep the option of the trial open while we talked to the radiation oncologist. I have no way of knowing if they have anyone else in consideration for this trial, but I couldn't hold someone else up if it meant this trial could help them.

God's ways and his timing are perfect. When the oncologist, Dr Hwang, came in the room, he told us that the labs from that morning showed an increase in a liver enzyme off the chart high, making me ineligible for this trial at this time. Thus the answer about the slot for the trial, and our way forward to radiation. This all happened Tuesday, we scheduled and attend the pre-radiation appointment Wednesday and we begin radiation on Thursday. The treatment will last 10 business days which puts the end at around September 8, since the time will include Labor Day.

That covers the latest physically, but I cannot close without covering a few things spiritual, emotional, and mental. Last Thursday, after we had begun the "tweaked" pain management regimen, and it seemed to have a great effect, at least until Sunday into Monday. But it was really Monday and Tueday together that I felt completely weak and helpless. I firmly believed that I could not take nine weeks of chemo, knowing that soon my pain would be out of control and I would have no chance to manage it at a comfortable level. This weakness I felt, even to a point of abandonment, despite the fight I was having that God said he would never leave me nor forsake me. Of course, my feelings gave way to fear, because I let them, even knowing how dangerous following feelings can be.

The bottom line? God had not abandoned me. He gave me this gift to voice what I was feeling, experiencing and agonizing over, so he could show his faithfulness as my heavenly father. More than that he reinforced his promises to be with me. Many whom I have told of this has responded back that he is holding me, each day he is walking with me, so that I don't fall. God is good, all the time. And in the words of a special song this past Sunday, it is so good to know that "I Need Thee Every Hour," and when I come to him, he blesses me so I do not doubt.

Saturday, August 20, 2011

God's Day for You, for Me

Cynth and I are enjoying the remnants of a rather large storm system that is still passing by. One of those Dog Days relievers, I suppose. We're getting bright lightening and some rumbles of thunder. Earlier we had a mix of rain and hail. The rain we need; the hail we could do without. But there is a reason for the hail, too, so it is all good to me.

Beautiful sunrises greeted me each day this week, but today's spectacular display is my favorite, for today at least. You'll have to ask me why. A large part of it is the clouds that keeps the sun hidden until it is high enough on the celestial sphere to break through any openings. Today's show included a huge anvil system with a row of cumulonimbus in front. The anvil and most of the cumulonimbus were a deep dark shade of blue-grey. Only the very top of the cumulonimbus were lit up by the sun as it struggled in it's rise in the sky.

A night of thunderstorms that lasted beyond 2AM left low lying fog and an overcast sky with a bank of clouds in the east, the sun rising below. I've not kept it a secret that I like all types of weather, and a special weather pattern I am particularly fond of is cloudy, overcast days with a light rain. Odd, since years ago, I would have equated a rainy day with trouble, disappointment in cancelled plans, being sad . . . nothing that would even look like the view I have now.

Every day is a precious gift. I can enter it and use however I will, and how I enter it, how I use it will largely determine many factors of the day. Really, out of all the things I think I have control over and don't, this part of my life is the only thing I do have control over and it is a primary thing I don't want any control over. In fact, I actively disavow control over how my day begins. If I have any control over it, then I am answerable for it, I have responsibility, and that means I have to acknowledge the terrible truth.

All is not lost, though. I know the One who painted the sky for me in the morning, and I praise him for his gift, asking him to guide me in his way in his day so that I might be faithful to his call. I know his son, who bled and died hanging on a cursed tree, taking my sins upon himself for my salvation. I also know his spirit, who guides me and teaches me in God's truth. Thank God for his truth that conquers and frees us from our slavery to enable us then to obedience.

Tuesday, August 16, 2011

Update #2 from the Beginning of August 2011

My apologies, but I felt as though this post was going to grow really long and I took the liberty of splitting it. Now I can get back to providing the most recent news.

We went to the appointment with Dr Felice ready to "direct" our desire to go back to either of the previous forms of chemo, thinking that we didn't really give them a chance to be in any way successful. He beat me to the punch by stating that he sent us to Georgetown because he felt that we'd gotten as much benefit that we could hope to get, when all factors were considered. After taking blood to check the counts, we were on our way to an MRI of the right hip. We had had an x-ray of that hip prior to our vacation, and the results had come back negative, nothing to report.

The MRI of August 3, however, shows much more. We didn't get the full report until much later, but by Friday, August 5, we knew that the indication was that cancer had spread to the hips. Prior to getting that news from Dr Felice's nurse, Cynth and I had talked about the pain that had resurfaced and the nausea that had shown up during our beach trip, and the resulting wonder whether that signaled the beginning of the end. Once we had the report of the MRI, we learned that their interpretation is that there are two lesions on the right hip, the largest measuring 4.7 cm by 3.1 cm, and one on the left hip measuring 1.6 cm.

We went to our August 10 Lombardi Cancer Center appointment with Dr Pishvaian to find out which trial he planned for our next round of treatment. After discussing the pain level (estimated at seven) that afternoon, and nearly losing the opportunity for this trial until we got the pain under control, he recommended altering our pain med schedule and re-assessing at our August 17 appointment. If the pain is manageable, we will be set for beginning the trial on August 23. Briefly, the treatment involves a once weekly infusion of the first drug, and four pills of a standard therapy chemo (two pills twice daily) for fourteen days.

So, that completes the update. Even though I went through these events and didn't stop along the way to emphasize God's work, he was there nonetheless. Did you see him? In the recurring pain that threatened to strangle our vacation, God was ever-present, restraining the pain from what it could have been if unfettered. He was there and listening to me in my sinful pride about my wants, letting me have my moment of crying in his arms. He was there just the same then as he was when he answered prayers and gave clear direction about Georgetown. I haven't doubted his love, provision nor direct involvement in this story he is writing. I do not doubt his grace by allowing me the joy of writing my part of it.

The beginning of the end? I don't know, and it doesn't really matter. What does matter is that God is glorified by everything that proceeds from here forward, and that I joyfully am obedient to complete the course he has set before me.

I appreciate all of you who have conveyed your concern over this period while I attempted to finish this post. Your care and prayers for us have carried us along as we sought God's guidance in all these decisions. We thank you for your many gifts of self.

Saturday, August 6, 2011

Update #1 from the End of July 2011

Time for a quick update.

After our week of appointments, and a pre-weekend packing exercise, we (Cynth, Aaron, Rach, and I drove to Nag's Head on NC's Outer Banks for a week at the beach. We had a wonderful place to stay (thank you, Bob and Mom), awesome meals to eat (thank you, Beth, and Mom), and seven much-needed days of relaxation. Largely uneventful, I did have a few days where back pain impacted my enjoyment at a significant level. And something new: a couple of moments of nausea that also impacted me significantly. Beautiful sunrises, fantastic beach time and, most important of all - Spirit-led time with family - made the past week a grand time.

Interesting factoid: There is a Legend of Nag's Head. It seems that way back, back before there were all those beach houses, restaurants, and the Wright Brother's Memorial, a lantern or two would be hung around the neck of a nag. This nag would then be led back and forth on the dunes, giving the appearance of a ship rocking at anchor to ships approaching the coast. Thinking the lights were of a ship safe at anchor, the inbound ship would continue, running aground on the shoals, thus becoming easy plunder for the land pirates of Nag's Head.

Our return on Saturday permitted us to attend worship Sunday for wonderful communion with God's people and filling with the Spirit. Having been away the previous two Sundays, we felt as though we had missed a month. We sang a couple of hymns set to contemporary tunes that we both love: "Glorious Day (Living He Loved Me)" and "O Love That Will Not Let Me Go." Cynth and I left the church parking lot, once again in awe of the Spirit's guiding at worship.

I have finished the book on Bonhoeffer by Metaxas. Now I begin the Cost of Discipleship by Bonhoeffer. I had long heard of this book, never anything about it substantively. But reading Metaxas, I want to understand Bonhoeffer's term of "Cheap Grace," compared with "Costly Grace," especially as it would apply to the Christian today. It may be as simple as his life demonstrates by sharing in the fate of Jews, or it may something much more demanding in a day-to-day sense.

Now for more updates: After posting the prayer request Wednesday morning prior to work, the day started much as the previous two days - despite taking both styles of pain medication, a bit of back pain began to creep in somewhere between 8:30 and 9:30. More pain at about 12:30 led to another dose of pain medicine which caused me to fall asleep. At work. But Cynth woke up a little after two, mainly to tell me our oncology appointment was 2:30, not three as I had thought.

Wednesday, August 3, 2011

Please Pray With Us . . .

. . . while we discuss with Dr Felice a plan forward that we hope will include chemo that I've already been on which we know is keeping the disease stable. Pray with us that God will guide our steps, and that a situation which can turn on emotion will instead be filled with a humble spirit.

I promise a longer update later this evening. Thanking God for every thought of you, I am, servant of him who loves us and given himself for us.